charity_id 94
Alport Syndrome is a rare hereditary kidney disease that causes kidney failure, hearing loss, and vision abnormalities.

Alport Syndrome leads to kidney failure in 50% of the boys with the predominant, X-linked form of the disease by age 25 and 90% by age 40. These patients require dialysis or a kidney transplant. Some girls with Alport Syndrome are impacted similarly to boys but most see later disease progression because of the way the disease is inherited.

Many people with Alport Syndrome also develop hearing loss at some point in their lives, often by the time they are teenagers.

An Alport Syndrome diagnosis devastates families because it often affects multiple family members across generations. There is currently no treatment proven to prevent the development of kidney failure in people with Alport Syndrome; however, early diagnosis is essential as there are medications to delay the progression of the disease. Current research is advancing the knowledge of other drugs which could potentially further delay the onset of this disease while work continues on a cure.

The Alport Syndrome Foundation is the leading independent nonprofit organization in the United States serving and giving a voice to the Alport Syndrome community.

Our mission is to improve the lives of those affected by Alport Syndrome through education, empowerment, advocacy, and research. Our vision is to conquer Alport Syndrome.




WE'RE CURRENTLY PARTICIPATING IN

Select an event to see more details and register.





EVER WONDER WHERE YOUR
GENEROUS DONATIONS GO?



$50
HELPS ASF PROVIDE CLINICAL PRACTICE RECOMMENDATIONS TO PHYSICIANS TO ENSURE PATIENTS RECEIVE QUALITY CARE.
$100
HELPS FUND ASF'S PEER SUPPORT NETWORK, INCLUDING A PEER MENTOR PROGRAM AND ONLINE SUPPORT GROUP.
$250
HELPS ASF FUND RESEARCH TO FIND BETTER TREATMENTS AND CURES FOR ALPORT SYNDROME.



CONTACT THIS CHARITY CONTACT

TO CHECK OUT THIS CHARITY'S WEBSITE CLICK HERE